Funds Raised for RNLI Volunteer’s Son After Brain Injury

Nathan Parry volunteers for Flint RNLI, saving lives at sea for fifteen years. Now, Nathan and his family need our help because his son, Theo, has Sturge Weber Syndrome, a rare neurological disorder.

Theo’s symptoms include a facial birthmark, glaucoma, epilepsy, and developmental delays. Last April, Theo had surgery, but unexpected issues caused a brain injury.

After weeks of worry, Theo is now at home, fighting hard but needing special items, therapies, expert care, and home changes. The living room holds a hospital bed, oxygen, and a monitor. Yet, Theo needs his own space, including a bedroom, hoists, and necessary equipment.

Currently, he bathes in an inflatable tub from Amazon, which sits on the living room floor. The family faces an uncertain future as creating a suitable space for Theo in their home will cost around £150,000. Health and government support only cover half of this amount.

Theo’s Fight Fund helps the family, aiming to give them a normal life. Their house requires changes to accommodate Theo and his gear. These changes include a wet room to allow him to bathe easily.

The JustGiving page has already raised £10,000, with a goal of £20,000.